Eyes looking up to Heaven

Eyes looking up to Heaven
Dear God, I'm so tiny, but I know you can hear me, please send me a heart soon so that I can be the little sister, daughter and granddaughter that I know I am destined to be!

Brynn ... a reason to hope

Hi, my name is Brynn Madeleine Lewis. I was born on November 12th to the best parents a girl could have, Scott and Amy Lewis. I also have a wonderful family too, my big brother, Brady Lewis is awesome, he attends Wylie Elementary school in Henderson, TX. My grandparents are Sharon Reeves Collins, Judy Ann Lewis, and Johnny and Judy Lee Lewis. God has blessed me with so many supportive friends and family and that is extra special at this time, because I have a big battle ahead of me. I was born with a congenital heart defect, and despite all the awesome efforts of my doctors, I need a heart transplant ASAP. As you can imagine all the doctors bills, hospital, tests and procedures, can add up to a large amount of money, quickly. My mommy is not able to return to work, and is staying here with me, taking good care of me, with the help of all the terrific nurses and doctors. Once I receive my new heart, we will have to live in Dallas, close to the hospital for at least 3 months, so I can get the proper care and ensure everything goes well. If you would like to help me out in any way, I would forever be appreciative and thankful, and so would Mommy and Daddy, an account has been set up for me to collect any donation you would like to give. Please continue to pray for me and my family, we know that God will take good care of me and He will provide.

Tuesday, March 23, 2010

Be sure and watch KLTV Channel 7 tonight at 10 to watch our interview!  It will also air tomorrow morning and tomorrow afternoon at 5:00.  If you miss those broadcasts, go to http://www.kltv.com/ to watch the interview.  We were also on 100.7 FM this morning.  I'm not for sure if the radio station is streaming the interview on their web page or not.  Big brother Brady was present at both interviews, and hopefully he will get some good airtime! 


  1. I LOVE the new picture!! I'll try to watch the interview tomorrow.

  2. My precious angel!!!
    I love you, Brynn.
    Love, Ma-Ma

  3. I loved the interview on t v tonight on channel 7. It was so good, and told the most important things going on right now in my little sweetheart Brynn's life. It was an impressive interview by all the members of Amy's family. God bless you all tonight, God is listening and watching over my baby girl. He is faithful!!!
    Love you, Ma-Ma

  4. I am a social worker the Medically Dependent Children Program that is a state administered program for children who need medical assistance including medicaid and nursing care at home. Please check out this website and then give me a call at 903.232.3254 if you are interested or have questions. http://www.dads.state.tx.us/providers/MDCP/index.cfm

  5. I just saw your story on HLN. My prayers are with you!


February 15, 2009

Hello everyone! Well, Valentine's Day has come and gone...we were hoping Brynn would have received a new heart on that day. It wasn't meant to be, but we won't get discouraged!
Brynn has had a busy day today. I discovered that there might be a problem with Brynn's feeding tube. Sure enough, the x-ray showed that it had migrated out of her tummy. That meant she would need it to be taken out and replaced. She did get very upset and her heart rate went up, but she calmed down and I just laid her down for a long night's rest!
If Brynn hasn't received a new heart within the next month, the doctors want to do another cardiac catheterization and plan for the Glenn procedure. It is a surgery to remove the B-T shunt, which she will ultimately outgrow. It will also upgrade her condition to a more stable one.
She is just over 11 pounds (!) and the doctors and nurses are so excited. One of her doctors said that her thighs are really filling out, but that she hasn't reached thunder thigh status quite yet!
I'm going to try to post some pictures, so stay tuned!

Love to you all,