Eyes looking up to Heaven

Eyes looking up to Heaven
Dear God, I'm so tiny, but I know you can hear me, please send me a heart soon so that I can be the little sister, daughter and granddaughter that I know I am destined to be!

Brynn ... a reason to hope

Hi, my name is Brynn Madeleine Lewis. I was born on November 12th to the best parents a girl could have, Scott and Amy Lewis. I also have a wonderful family too, my big brother, Brady Lewis is awesome, he attends Wylie Elementary school in Henderson, TX. My grandparents are Sharon Reeves Collins, Judy Ann Lewis, and Johnny and Judy Lee Lewis. God has blessed me with so many supportive friends and family and that is extra special at this time, because I have a big battle ahead of me. I was born with a congenital heart defect, and despite all the awesome efforts of my doctors, I need a heart transplant ASAP. As you can imagine all the doctors bills, hospital, tests and procedures, can add up to a large amount of money, quickly. My mommy is not able to return to work, and is staying here with me, taking good care of me, with the help of all the terrific nurses and doctors. Once I receive my new heart, we will have to live in Dallas, close to the hospital for at least 3 months, so I can get the proper care and ensure everything goes well. If you would like to help me out in any way, I would forever be appreciative and thankful, and so would Mommy and Daddy, an account has been set up for me to collect any donation you would like to give. Please continue to pray for me and my family, we know that God will take good care of me and He will provide.

Monday, April 5, 2010

Happy Easter!!

It's been so long since I've posted!  Believe it or not, it really is busy for us in the hospital.  Brynn is doing amazingly well, thanks to the Good Lord.  She enjoys swinging in her swing, bath time is well tolerated now and she is more at ease overall.  She got to go for a ride in her buggy around the unit last Thursday!  She LOVED it!  She was so patient with us because it takes a long time to get her in the buggy with her entourage (her lines), oxygen tank and her portable monitor.  Today is a HUGE milestone for Brynn...she is going to go outside for the FIRST time in her life!!!  I'm so happy!  Her nurse practitioner and another nurse will accompany us on our excursion.  There are conditions though,  Brynn must wear sunscreen, sunglasses, a big floppy hat and a cool outfit...check, check, check and check.  We plan on enjoying the flowers and the trees, hearing the birds sing and feeling the warm sunlight on our face.  My, my what we all take for granted...the little things.  How I've learned my lesson, never take anything for granted. 

I will post pictures soon.  I almost forgot to mention that due to the fact that Brynn has been gaining weight at such a phenomenal rate, her doctors may decide today to decrease her calories!  Way to go Brynn!  God has been so good to Brynn...he allows her to breathe on her own, to giggle, to smile, to ride in her buggy, to play dress up with Mommy and to do most all of the things a healthy baby would do...thank YOU SWEET JESUS. 

Thank you all for your prayers and all of the things you do for us.  It is so overwhelming to us to see how much you all care for and love our little Brynn. 

Love to you all,

Brynn & Amy


  1. Oh, Amy...This is truly a very big milestone in Brynn's life!!! I'm so glad you can sit down and record all of this about my sweet angel. Yes, God has blessed us all so much with Brynn into our lives. I can't see and hold her like I want to, but, I'm blessed because I can see her pictures and videos and like last night, talk to her on the phone!! It won't be long and I'll get to see her for real!!
    I hear the birds singing today and just to know my Brynn can go outside and see the trees blooming and hear the birds singing and smell the spring flowers and grass!!! What a wonderful Saviour we have!! How in the world could some one NOT believe there's a God when all we have to do is look at a beautiful rose and smell it's fragrance!!! I do love you Jesus!!!!
    Love you and Brynn,

  2. Oh wow I am so glad she is doing so well! I was getting worried because there hadn't been a post from you in so long. I hope Brynn enjoyed her time outside :) I can't wait to see pictures!

  3. Amy, This is Roxanna and I stummbled across this link on Brynn's FB site...I haven't asked Christy lately how Brynn was actually doing because I have been so busy....but again I have tears of joy and am so in Awe of what God can do! God Bless you, Brynn and your family!


February 15, 2009

Hello everyone! Well, Valentine's Day has come and gone...we were hoping Brynn would have received a new heart on that day. It wasn't meant to be, but we won't get discouraged!
Brynn has had a busy day today. I discovered that there might be a problem with Brynn's feeding tube. Sure enough, the x-ray showed that it had migrated out of her tummy. That meant she would need it to be taken out and replaced. She did get very upset and her heart rate went up, but she calmed down and I just laid her down for a long night's rest!
If Brynn hasn't received a new heart within the next month, the doctors want to do another cardiac catheterization and plan for the Glenn procedure. It is a surgery to remove the B-T shunt, which she will ultimately outgrow. It will also upgrade her condition to a more stable one.
She is just over 11 pounds (!) and the doctors and nurses are so excited. One of her doctors said that her thighs are really filling out, but that she hasn't reached thunder thigh status quite yet!
I'm going to try to post some pictures, so stay tuned!

Love to you all,