It's been so long since I've posted! Believe it or not, it really is busy for us in the hospital. Brynn is doing amazingly well, thanks to the Good Lord. She enjoys swinging in her swing, bath time is well tolerated now and she is more at ease overall. She got to go for a ride in her buggy around the unit last Thursday! She LOVED it! She was so patient with us because it takes a long time to get her in the buggy with her entourage (her lines), oxygen tank and her portable monitor. Today is a HUGE milestone for Brynn...she is going to go outside for the FIRST time in her life!!! I'm so happy! Her nurse practitioner and another nurse will accompany us on our excursion. There are conditions though, Brynn must wear sunscreen, sunglasses, a big floppy hat and a cool outfit...check, check, check and check. We plan on enjoying the flowers and the trees, hearing the birds sing and feeling the warm sunlight on our face. My, my what we all take for granted...the little things. How I've learned my lesson, never take anything for granted.
I will post pictures soon. I almost forgot to mention that due to the fact that Brynn has been gaining weight at such a phenomenal rate, her doctors may decide today to decrease her calories! Way to go Brynn! God has been so good to Brynn...he allows her to breathe on her own, to giggle, to smile, to ride in her buggy, to play dress up with Mommy and to do most all of the things a healthy baby would do...thank YOU SWEET JESUS.
Thank you all for your prayers and all of the things you do for us. It is so overwhelming to us to see how much you all care for and love our little Brynn.
Love to you all,
Brynn & Amy
Monday, April 5, 2010
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February 15, 2009
Hello everyone! Well, Valentine's Day has come and gone...we were hoping Brynn would have received a new heart on that day. It wasn't meant to be, but we won't get discouraged!
Brynn has had a busy day today. I discovered that there might be a problem with Brynn's feeding tube. Sure enough, the x-ray showed that it had migrated out of her tummy. That meant she would need it to be taken out and replaced. She did get very upset and her heart rate went up, but she calmed down and I just laid her down for a long night's rest!
If Brynn hasn't received a new heart within the next month, the doctors want to do another cardiac catheterization and plan for the Glenn procedure. It is a surgery to remove the B-T shunt, which she will ultimately outgrow. It will also upgrade her condition to a more stable one.
She is just over 11 pounds (!) and the doctors and nurses are so excited. One of her doctors said that her thighs are really filling out, but that she hasn't reached thunder thigh status quite yet!
I'm going to try to post some pictures, so stay tuned!
Love to you all,
Amy
Brynn has had a busy day today. I discovered that there might be a problem with Brynn's feeding tube. Sure enough, the x-ray showed that it had migrated out of her tummy. That meant she would need it to be taken out and replaced. She did get very upset and her heart rate went up, but she calmed down and I just laid her down for a long night's rest!
If Brynn hasn't received a new heart within the next month, the doctors want to do another cardiac catheterization and plan for the Glenn procedure. It is a surgery to remove the B-T shunt, which she will ultimately outgrow. It will also upgrade her condition to a more stable one.
She is just over 11 pounds (!) and the doctors and nurses are so excited. One of her doctors said that her thighs are really filling out, but that she hasn't reached thunder thigh status quite yet!
I'm going to try to post some pictures, so stay tuned!
Love to you all,
Amy
Oh, Amy...This is truly a very big milestone in Brynn's life!!! I'm so glad you can sit down and record all of this about my sweet angel. Yes, God has blessed us all so much with Brynn into our lives. I can't see and hold her like I want to, but, I'm blessed because I can see her pictures and videos and like last night, talk to her on the phone!! It won't be long and I'll get to see her for real!!
ReplyDeleteI hear the birds singing today and just to know my Brynn can go outside and see the trees blooming and hear the birds singing and smell the spring flowers and grass!!! What a wonderful Saviour we have!! How in the world could some one NOT believe there's a God when all we have to do is look at a beautiful rose and smell it's fragrance!!! I do love you Jesus!!!!
Love you and Brynn,
Mama
Oh wow I am so glad she is doing so well! I was getting worried because there hadn't been a post from you in so long. I hope Brynn enjoyed her time outside :) I can't wait to see pictures!
ReplyDeleteAmy, This is Roxanna and I stummbled across this link on Brynn's FB site...I haven't asked Christy lately how Brynn was actually doing because I have been so busy....but again I have tears of joy and am so in Awe of what God can do! God Bless you, Brynn and your family!
ReplyDelete