Eyes looking up to Heaven

Eyes looking up to Heaven
Dear God, I'm so tiny, but I know you can hear me, please send me a heart soon so that I can be the little sister, daughter and granddaughter that I know I am destined to be!

Brynn ... a reason to hope

Hi, my name is Brynn Madeleine Lewis. I was born on November 12th to the best parents a girl could have, Scott and Amy Lewis. I also have a wonderful family too, my big brother, Brady Lewis is awesome, he attends Wylie Elementary school in Henderson, TX. My grandparents are Sharon Reeves Collins, Judy Ann Lewis, and Johnny and Judy Lee Lewis. God has blessed me with so many supportive friends and family and that is extra special at this time, because I have a big battle ahead of me. I was born with a congenital heart defect, and despite all the awesome efforts of my doctors, I need a heart transplant ASAP. As you can imagine all the doctors bills, hospital, tests and procedures, can add up to a large amount of money, quickly. My mommy is not able to return to work, and is staying here with me, taking good care of me, with the help of all the terrific nurses and doctors. Once I receive my new heart, we will have to live in Dallas, close to the hospital for at least 3 months, so I can get the proper care and ensure everything goes well. If you would like to help me out in any way, I would forever be appreciative and thankful, and so would Mommy and Daddy, an account has been set up for me to collect any donation you would like to give. Please continue to pray for me and my family, we know that God will take good care of me and He will provide.

Thursday, April 22, 2010

Hello Everyone!

I am finally getting a chance to update Brynn's blog!  She is doing fine, but she had a rough night and morning.  Feeding tubes are the pits!  She has had it removed and replaced twice since last night, along with an x-ray following each placement to make sure the tube is in the right place.  Finally, at 4:00 this afternoon we got it right.  Let the feedings resume!  Brynn also had a routine ECHO today, but I haven't heard the results yet.  She got a lot of the "good stuff" this morning, therefore, she is sleeping, therefore, I have the time to let all of you know how she is doing.  :) 

She is a happy little girl.  Very happy.  Her hair is getting longer and darker.  She loves attention, and she gets quite a lot of that!  She has the prettiest smile.  She loves balloons and "Penny" her ladybug mobile.  She loves Minnie Mouse and Elmo.  She loves me to read Elmo's Guessing Game About Colors to her.  She also loves what we like to call "Spa Day".  It's a glorified regime of bathing, hair washing, moisturizing, hair brushing and putting on a new outfit.  It also includes changing her bed linens.  Do you believe that we coordinate her blanket with what she is wearing?! 

We have been waiting 93 days for a heart.  I pray so much that today will be "The Day".  When she goes into surgery for her transplant, I would love for everyone to wear their "Hearts for Brynn" shirt.  I think about that day all of the time...

Love to you all,

Brynn & Amy


  1. Amy, you are in my prayers and thoughts daily. I want you to know how much baby Brynn has touched all of her hearts already. I can't wait till that glorious day you get news of a new heart. I am always thinking "maybe they are about to get the news." Even my little girl is praying hard. She is so mesmerized by her story and wants to do all she can help. She told me she was going to give all her money at the fundraiser to baby Brynn. When I told her I would pay for everything instead of her she said, "Mommy you were about you and I'll worry about me" (which is something I tell her all the time) Love and Prayers! The Medford Family

  2. Brynn has gotten SO big!! She looks beautiful and I was glad to see an update. I was so worried! I hope a heart comes for her soon. If I could give her one, I would. Give that beautiful baby girl a kiss for me please. I know you don't know me, but I check your blog often for updates. You are such a strong mama and I can't even begin to imagine what you and Brynn have gone through. {{{HUGS}}}

  3. P.S. I'm the same Amy Lee that has posted before. The other posts had my picture because I was logged in to the wrong account :O

  4. I always check your blog, Amy, before I turn it off and go to bed. The loving posts that are posted here are truly heart-warming...it's what keeps me going everyday besides Our Lord. I know He didn't let this baby angel survive for nothing...He has a special plan..it's coming, I know. I pray hard everyday, I'm not bragging, I asked God tonight what does He want me to do? I'm not praying for another angel to loose his/her life so Brynn can have a new heart, I just don't know what He wants me to do....I will do it. I know He will give me an answer. I'm so very blessed because God gave us all Brynn to love and that's why she's so healthy....she knows and feels the love her Mommy, Daddy, Brady, all the grand parents, aunts, uncles, cousins, friends, Drs. and nurses have showen her.
    Good night, my sweet angel, may God send His angels to watch over you tonight.
    Love you, Ma-Ma


February 15, 2009

Hello everyone! Well, Valentine's Day has come and gone...we were hoping Brynn would have received a new heart on that day. It wasn't meant to be, but we won't get discouraged!
Brynn has had a busy day today. I discovered that there might be a problem with Brynn's feeding tube. Sure enough, the x-ray showed that it had migrated out of her tummy. That meant she would need it to be taken out and replaced. She did get very upset and her heart rate went up, but she calmed down and I just laid her down for a long night's rest!
If Brynn hasn't received a new heart within the next month, the doctors want to do another cardiac catheterization and plan for the Glenn procedure. It is a surgery to remove the B-T shunt, which she will ultimately outgrow. It will also upgrade her condition to a more stable one.
She is just over 11 pounds (!) and the doctors and nurses are so excited. One of her doctors said that her thighs are really filling out, but that she hasn't reached thunder thigh status quite yet!
I'm going to try to post some pictures, so stay tuned!

Love to you all,