Eyes looking up to Heaven

Eyes looking up to Heaven
Dear God, I'm so tiny, but I know you can hear me, please send me a heart soon so that I can be the little sister, daughter and granddaughter that I know I am destined to be!

Brynn ... a reason to hope

Hi, my name is Brynn Madeleine Lewis. I was born on November 12th to the best parents a girl could have, Scott and Amy Lewis. I also have a wonderful family too, my big brother, Brady Lewis is awesome, he attends Wylie Elementary school in Henderson, TX. My grandparents are Sharon Reeves Collins, Judy Ann Lewis, and Johnny and Judy Lee Lewis. God has blessed me with so many supportive friends and family and that is extra special at this time, because I have a big battle ahead of me. I was born with a congenital heart defect, and despite all the awesome efforts of my doctors, I need a heart transplant ASAP. As you can imagine all the doctors bills, hospital, tests and procedures, can add up to a large amount of money, quickly. My mommy is not able to return to work, and is staying here with me, taking good care of me, with the help of all the terrific nurses and doctors. Once I receive my new heart, we will have to live in Dallas, close to the hospital for at least 3 months, so I can get the proper care and ensure everything goes well. If you would like to help me out in any way, I would forever be appreciative and thankful, and so would Mommy and Daddy, an account has been set up for me to collect any donation you would like to give. Please continue to pray for me and my family, we know that God will take good care of me and He will provide.

Tuesday, May 11, 2010

Brynn has THE PERFECT HEART at long last!

Dear Friends,

I have so much good news to share!  I will try my best to let you know of all the miracles that Brynn has experienced since Mother's Day.  I must wait until tonight when we go back to the Ronald McDonald House where the internet service is more reliable.  Everything is going beautifully and according to God's perfect plan! 

Praise the Lord!

Love to you all,

Amy & Brynn


  1. We are so exited for your family we have been praying for her for so long. SHe is just beautiful. God truely has plans for this little girl .

  2. God is Great! I heard about your daughter on the news recently and wanted to say I'm praying for your family. My daughter had open heart surgery in January at just 6 months old. In no way does it compare to a new heart, but i've recently began to reach out to those that live close to us that are effected by CHD. The surgery & recovery was the toughest thing ever, but again prayers helped all of us along the way! I wish you all the best!

  3. Hi Amy, Scott, and Brynn,
    I was sent your blog by the Cates (son Carter is multivisceral txplt and inpatient now). My son had a heart transplant at Children's two years ago. We're so happy for Brynn's miracle, and we hope her recovery is swift. We know you're anxious to get home! Please let us know if you have any questions or just need to talk! We'd love to help in any way we can. Hope to see you at the transplant picnic! God bless,
    The Harrisons

  4. Oh yes!! I cannot wait to hear the story. Congratulations everyone. {{{HUGS AND KISSES}}} to Brynn!


February 15, 2009

Hello everyone! Well, Valentine's Day has come and gone...we were hoping Brynn would have received a new heart on that day. It wasn't meant to be, but we won't get discouraged!
Brynn has had a busy day today. I discovered that there might be a problem with Brynn's feeding tube. Sure enough, the x-ray showed that it had migrated out of her tummy. That meant she would need it to be taken out and replaced. She did get very upset and her heart rate went up, but she calmed down and I just laid her down for a long night's rest!
If Brynn hasn't received a new heart within the next month, the doctors want to do another cardiac catheterization and plan for the Glenn procedure. It is a surgery to remove the B-T shunt, which she will ultimately outgrow. It will also upgrade her condition to a more stable one.
She is just over 11 pounds (!) and the doctors and nurses are so excited. One of her doctors said that her thighs are really filling out, but that she hasn't reached thunder thigh status quite yet!
I'm going to try to post some pictures, so stay tuned!

Love to you all,