Dear Friends,
I have so much good news to share! I will try my best to let you know of all the miracles that Brynn has experienced since Mother's Day. I must wait until tonight when we go back to the Ronald McDonald House where the internet service is more reliable. Everything is going beautifully and according to God's perfect plan!
Praise the Lord!
Love to you all,
Amy & Brynn
Tuesday, May 11, 2010
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February 15, 2009
Hello everyone! Well, Valentine's Day has come and gone...we were hoping Brynn would have received a new heart on that day. It wasn't meant to be, but we won't get discouraged!
Brynn has had a busy day today. I discovered that there might be a problem with Brynn's feeding tube. Sure enough, the x-ray showed that it had migrated out of her tummy. That meant she would need it to be taken out and replaced. She did get very upset and her heart rate went up, but she calmed down and I just laid her down for a long night's rest!
If Brynn hasn't received a new heart within the next month, the doctors want to do another cardiac catheterization and plan for the Glenn procedure. It is a surgery to remove the B-T shunt, which she will ultimately outgrow. It will also upgrade her condition to a more stable one.
She is just over 11 pounds (!) and the doctors and nurses are so excited. One of her doctors said that her thighs are really filling out, but that she hasn't reached thunder thigh status quite yet!
I'm going to try to post some pictures, so stay tuned!
Love to you all,
Amy
Brynn has had a busy day today. I discovered that there might be a problem with Brynn's feeding tube. Sure enough, the x-ray showed that it had migrated out of her tummy. That meant she would need it to be taken out and replaced. She did get very upset and her heart rate went up, but she calmed down and I just laid her down for a long night's rest!
If Brynn hasn't received a new heart within the next month, the doctors want to do another cardiac catheterization and plan for the Glenn procedure. It is a surgery to remove the B-T shunt, which she will ultimately outgrow. It will also upgrade her condition to a more stable one.
She is just over 11 pounds (!) and the doctors and nurses are so excited. One of her doctors said that her thighs are really filling out, but that she hasn't reached thunder thigh status quite yet!
I'm going to try to post some pictures, so stay tuned!
Love to you all,
Amy
We are so exited for your family we have been praying for her for so long. SHe is just beautiful. God truely has plans for this little girl .
ReplyDeleteGod is Great! I heard about your daughter on the news recently and wanted to say I'm praying for your family. My daughter had open heart surgery in January at just 6 months old. In no way does it compare to a new heart, but i've recently began to reach out to those that live close to us that are effected by CHD. The surgery & recovery was the toughest thing ever, but again prayers helped all of us along the way! I wish you all the best!
ReplyDeleteHi Amy, Scott, and Brynn,
ReplyDeleteI was sent your blog by the Cates (son Carter is multivisceral txplt and inpatient now). My son had a heart transplant at Children's two years ago. We're so happy for Brynn's miracle, and we hope her recovery is swift. We know you're anxious to get home! Please let us know if you have any questions or just need to talk! We'd love to help in any way we can. Hope to see you at the transplant picnic! God bless,
The Harrisons
Oh yes!! I cannot wait to hear the story. Congratulations everyone. {{{HUGS AND KISSES}}} to Brynn!
ReplyDelete