Eyes looking up to Heaven

Eyes looking up to Heaven
Dear God, I'm so tiny, but I know you can hear me, please send me a heart soon so that I can be the little sister, daughter and granddaughter that I know I am destined to be!

Brynn ... a reason to hope

Hi, my name is Brynn Madeleine Lewis. I was born on November 12th to the best parents a girl could have, Scott and Amy Lewis. I also have a wonderful family too, my big brother, Brady Lewis is awesome, he attends Wylie Elementary school in Henderson, TX. My grandparents are Sharon Reeves Collins, Judy Ann Lewis, and Johnny and Judy Lee Lewis. God has blessed me with so many supportive friends and family and that is extra special at this time, because I have a big battle ahead of me. I was born with a congenital heart defect, and despite all the awesome efforts of my doctors, I need a heart transplant ASAP. As you can imagine all the doctors bills, hospital, tests and procedures, can add up to a large amount of money, quickly. My mommy is not able to return to work, and is staying here with me, taking good care of me, with the help of all the terrific nurses and doctors. Once I receive my new heart, we will have to live in Dallas, close to the hospital for at least 3 months, so I can get the proper care and ensure everything goes well. If you would like to help me out in any way, I would forever be appreciative and thankful, and so would Mommy and Daddy, an account has been set up for me to collect any donation you would like to give. Please continue to pray for me and my family, we know that God will take good care of me and He will provide.

Wednesday, May 5, 2010

Oh, Happy Day!

I can't write too much tonight because the internet service here is no good!  I'll try to bring everyone up to speed this weekend, so be sure and check back in.  Brynn is back!  She opened her eyes tonight, and we played and played!  She smiled at me and Elmo!  She played pat-pat too.  I started crying.  I missed my little girl so much!  I can't wait to hold her soon.  Thank you all for your prayers, God is good!!

Love to you all!
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2 comments:

  1. SharonMay 6, 2010 at 12:56 PM

    Amy, I've been praising and thanking God all yesterday, last night and today for bringing our sweet angel Brynn back....I know you've missed her!
    Love you sweet Brynn, Ma-Ma

    ReplyDelete
  2. Sean, Chelle and Carter CatesMay 10, 2010 at 10:58 PM

    Hello Lewis Family,
    We are the parents you "met" in the parking gargage Monday night at CMCD with the Donate Life Texas license plates. I have not had the opportunity to read your daughter's story yet, but I know it will be amazing feat of faith, love and hope. We would like to invite you to visit us on the 12th Floor ICU (Rm 272) so that we can get to know each other better and just maybe we could be a resource to you. Our son, Carter, is nearly 3 years old and will celebrate his 2 yr transplant anniversary/birthday on May 20th. He is a multivisceral transplant recipient which is a big fancy world for multi-organ transplanted - Carter received 5 organs including a liver, stomach, small bowel, spleen and pancreas. His website is http://www.cartermcates.com/. Please feel free to share.

    You can also contact us via email at smccmc@yahoo.com and/or ccates2000@yahoo.com. Our cell phones are 214-457-9327 and 214-492-3262.

    Congratulations on Brynn receiving her heart (and getting the Donate Life Texas plates).

    P.S. Chelle's grandmother lives in Henderson. We were just there two weeks ago to celebrate her 85 birthday.

    Hope to hear from you soon.

    God bless,

    The Cates Family
    Sean, Chelle and Carter Cates
    www.cartermcates.com

    ReplyDelete

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February 15, 2009

Hello everyone! Well, Valentine's Day has come and gone...we were hoping Brynn would have received a new heart on that day. It wasn't meant to be, but we won't get discouraged!
Brynn has had a busy day today. I discovered that there might be a problem with Brynn's feeding tube. Sure enough, the x-ray showed that it had migrated out of her tummy. That meant she would need it to be taken out and replaced. She did get very upset and her heart rate went up, but she calmed down and I just laid her down for a long night's rest!
If Brynn hasn't received a new heart within the next month, the doctors want to do another cardiac catheterization and plan for the Glenn procedure. It is a surgery to remove the B-T shunt, which she will ultimately outgrow. It will also upgrade her condition to a more stable one.
She is just over 11 pounds (!) and the doctors and nurses are so excited. One of her doctors said that her thighs are really filling out, but that she hasn't reached thunder thigh status quite yet!
I'm going to try to post some pictures, so stay tuned!

Love to you all,

Amy